ERN RARE-LIVER is a Europe-wide network for centers of excellence in the clinical management of rare liver disease in adults and in children. Types of diseases covered by the network currently include: Autoimmune liver diseases (AILD), metabolic liver diseases, biliary atresia, rare cholestatic liver diseases; structural and vascular liver disease and rare liver disease in pregnancy.
For more information please see https://rare-liver.eu/. For any question and information on how to use the Clinical Patient Management System (CPMS*), contact ERN RARE-LIVER on: firstname.lastname@example.org.
CPMS can be accessed here: https://cpms.ern-net.eu/login/
* CPMS is a web-based clinical software application providing a secure platform to exchange expertise on difficult rare disease cases. Healthcare professionals can enroll and discuss own patients, as well as contribute their expertise to the panel of a colleague. Full Members and Affiliated Partners can apply for regular accounts. Collaborative Partners and External Experts can apply for guest accounts. A guest account will only be active for a limited time frame between three months and one year or as long as the panel for the case discussion is open.
Contact person if alterations/additions: